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    MODULE 1
    OVERCOMING BARRIERS TO QUALITY HEALTH CARE SERVICES

    "Clinicians...physicians and other health care providers who do not understand the health risks in the gay community cannot provide competent care."
    [Christopher E. Harris, MD, President of the Gay and Lesbian Medical Association]

    Cultural competency refers to the "spiritual, material, intellectual and emotional features of a social group...it encompasses, in addition to art and literature, lifestyles, ways of living together, value systems, traditions and beliefs."1 If your health care or social services provider is culturally competent, all persons entering the system, regardless of race, ethnicity, sexual orientation, or gender identity will receive fair and equal treatment. The provider's office, clinic, hospital, or other care-giving service recognizes that the dynamics of the cultural differences of lesbians, gays, bisexuals, and transgenders are equally important as those of the other cultures in our society.

      The goal of this module is...
      ...to provide you with the information and strategies you need to overcome the barriers to equal health care. If your caregiver has removed these barriers, you should be able to answer YES to the following three questions:
      • Has the caregiver adapted their services to meet your unique needs?
      • Does the caregiver recognize the role that our cultural system plays in our lives and the privileging it grants to certain groups of people?
      • Has the caregiver acknowledged the role his or her own background plays in the situation?

      If the answer to any of these is NO, you can take steps toward removing the barriers that preclude you from receiving equal health care and human services. (If you're not sure, hang on for a bit; we'll provide a more detailed explanation as we continue.)


    PART ONE: Removing the Barriers to Culturally Competent Health Care
    LGBT people experience the same kinds of disparities as people of color. Both groups receive lower quality medical care than 'straights' and whites. The result is misdiagnosis, improper treatment, greater disease, and premature death. Among the many causes for this are a shortage of minority physicians, inadequate insurance coverage, and racial stereotyping and bias.

    There's homophobia among nurses, doctors and medical students (some studies show that as many as 96% of lesbian women anticipate negative reactions from practitioners if they are open about their sexuality). And many insurance plans exclude illnesses and treatments specific to sexual orientation and gender identity. The shortcomings are many. Those in the health and human services field need to improve, but we needn't sit back and wait for them to become better. Those of us in the LGBT communities can help them along.

    Two Major Barriers
    Two of the major barriers to quality health care facing members of the LGBT community involve language and confidentiality.

      Languagee
      It's essential that your practitioner use the right language and understand its impact when addressing you. The language he or she uses should be inclusive, respectful, and comfortable for you. We've provided a list of definitions you can print out and provide to your practitioner to help him or her use the appropriate terms. You can also keep a copy of this list as a reference for the remainder of this course.

      Confidentiality
      Confidentiality is a ground rule for discussions of LGBT issues, but very often, within work environments, it's not possible to ensure protection for everyone. LGBT people are particularly vulnerable when it comes to confidentiality. For example, many of us may be uncomfortable attending open sessions. Providers should know this and they should do everything possible to assure that your confidentiality will be respected. If you have concerns about confidentiality, make them known.

    Additional barriers to quality health care include internalized fears, external conditions, and institutional traditions and practices.

      Internalized Barriers
      Oddly enough, we may have grown up learning to hate those who are like us and develop a hatred of ourselves because of our gender identity or sexual orientation. But we know, at some level, that we are what we have been taught to hate. It's not unlike the reaction of many minorities who have been raised in the predominant culture. This is not something your provider can 'heal', but it is something you can become aware of and overcome. (For help with this, contact your coach.)

      External Barriers
      If our expectation is that we will to be treated differently by a practitioner or their support staff, we may feel anxiety and avoid seeking medical or mental health care. But we are just as entitled to quality health care as everyone else and since our medical and mental health are essential parts of our lives, we should expect treatment that is no different from that accorded to anyone else. If you sense, in any way, that the treatment you receive is not equivalent to that given to others, you should make it clear to your practitioner or provider that you expect nothing less. They may simply be uncomfortable with LGBT issues. More than likely they have not been taught in medical school how to deal with these issues and so it becomes incumbent upon us to guide them. Bring them material to read or refer them to the professional version of this course.

      Institutional Barriers
      Society's institutions (i.e.: churches, government, clinics and hospitals, the courts) have long-established practices that inhibit open and honest communication. For example, in a medical setting, practitioners may not allow a partner or significant other into into an exam room or make the partner or significant other feel uncomfortable when present. Likewise, barriers are created by HMO's that exclude gay and lesbian partners from health insurance benefits. The same is true of social agencies that deter LGBT's from legally adopting children or receiving reproductive technology. If this is the case with your church, clinic, hospital, or social agency, they need to be educated as well. Here are some things you can do to make that happen:

      • Identify appropriate training programs and have them contact your provider;

      • Refer the provider to these programs;

      • Ask the provider to change intake and assessment forms that routinely say "husband" and "wife;"

      • Explain to the provider that stereotypical assumptions about LGBT people are wrong and result in some LGBT people being "invisible." (There are LGBT people of color, LGBT poor, elderly LGBT's, and those living with disabilities, or for whom religion or parents make it difficult to come out to their medical professional);

      • Promote training in LGBT couple issues; identify therapists who specifically work with lesbian or gay male couples;

      • Provide your therapist with information on bisexual and transgendered people;

      • Encourage your employer to include health insurance programs that allow coverage for LGBT folk or their families;

      • Support the work of GLSEN and other organizations that are working to change attitudes toward LGBT youth who are often silenced or told that they are too young to know if they are gay;

      • Encourage your physician to routinely screen EVERYONE for STD's (They often make the assumption that because someone is married he or she does not engage in same-sex or non-monogamous sex.);

      • Provide information to physicians who make decisions about alternative reproductive methods, surrogacy, or adoption, or lawyers who provide advice on the legal implications of family-building within a homophobic culture;

    Your Specific Health Needs
    While we have the same health needs as everyone else, we also have unique health care concerns. Ignorance of these on the part of providers impedes the willingness of LGBT people to come out to them. Therefore, it's not only important to come out to your provider, but to make them aware of the specific issues that affect you. Here's a brief summary of these concerns:

      Among all LGBT's
      • There is a higher percentage of substance abuse in the LGBT community. Consideration of the potential for alcohol, drug, and cigarette abuse should be made, without automatically assuming this is the case.

      • Rates of sexually transmitted infections are higher. Screening and education about HIV, HPV, and other diseases should be provided along with universal screens, without limiting tests due to assumptions about needs.

      • Additional misinformation and bias regarding the health care needs of LGBT people of color .

      Among Lesbians

      • Lesbians have higher rates of Breast and Cervical Cancer. This is likely due to not having children and avoiding regular gynecologic check-ups.

      • There is a higher rate of cigarette smoking among lesbians, thereby creating a higher risk of associated cancers.

      • Contrary to many expectations, lesbians become pregnant. GayHealth Magazine reports that "Lesbian* baby boomers are now building families at unprecedented rates...Three to six million lesbians are of childbearing age (Five to ten percent of the total U.S. women in that age group). Perhaps a fifth will be interested in being biological mothers during their potential childbearing years." Because they tend to be older than the general population, age is a significant risk factor.

      Among Gay Men

      • It's common knowledge that gay men are at high risk of HIV; what is not well-known is that there has been a notable rise in HIV among gay youth.

      • Gay men are at higher risk of Hepatitis and Rectal Cancer.

      • There is a higher rate of cigarette smoking in the gay community which brings with it the accompanying increased risk of associated cancers.

      Among Bisexuals
      Note: Many people who appear to be heterosexual may behave bisexually.

      • Bisexuals run a greater risk of HIV and sexually transmitted infections, depending upon their sexual behaviors.

      • Bisexuals have a greater need for information about family planning and cancer screening.

      • Men who consider themselves "straight" may engage in sexual activities with male-to-female transgendered persons.

      Among the Transgendered

      • Sexual reassignment surgery and/or cosmetic surgery requires unique medical treatment

      • Transgendered who undergo electrolysis may have related health issues

      • Those undergoing hormone treatment may suffer side-effects including blood clotting, strokes and anemia; a significant percentage of transgendered people (especially male-to-female) purchase hormones without a prescription and take them without medical supervision

      • Poor transgendered (primarily male-to-female) are at higher risk of HIV if they practice prostitution as a way to obtain money for hormones and/or surgery.

      • Poor transgendered (primarily male-to-female) are also at higher risk of infection from practices like improper breast augmentation.

      • The transgendered (primarily male-to-female) are also at higher risk of violence if they are in a relationship or involved with someone who does not know their status and they are discovered.

      • Post-operative transsexuals often adopt the view that they are now completely of the other gender and avoid health treatment for issues related to their birth gender (e.g. prostrate screening for those born male, pap smears for those born female)


      EXERCISE 1:
      Understanding the Barriers to Competent Care
      Choose one of the items listed below and send an e-mail to your coach describing what you plan to do to help improve your access to quality health.
      • Identify appropriate training programs and have them contact your provider
      • Refer the provider to these programs
      • Ask the provider to change intake and assessment forms that routinely say "husband" and "wife."
      • Explain to the provider that stereotypical assumptions about LGBT people are wrong and result in some LGBT people being "invisible." (There are LGBT people of color, LGBT poor, elderly LGBT's, and those living with disabilities, or for whom religion or parents make it difficult to come out to their medical professional.)
      • Promote training in LGBT couple issues; identify therapists who specifically work with lesbian or gay male couples;
      • Provide your therapist with information on bisexual and transgendered people.
      • Encourage your employer to include health insurance programs that allow coverage for LGBT folk or their families.
      • Support the work of GLSEN and other organizations that are working to change attitudes toward LGBT youth who are often silenced or told that they are too young to know if they are gay.
      • Encourage your physician to routinely screen EVERYONE for STD's (They often make the assumption that because someone is married he or she does not engage in same-sex or non-monogamous sex.)
      • Provide information to physicians who make decisions about alternative reproductive methods, surrogacy, or adoption, or lawyers who provide advice on the legal implications of family-building within a homophobic culture.

      You have one week to complete the above exercise. In the meantime, you may continue working through this module


    PART TWO: Coming Out to the Health Care Professional
    Prior to being able to come out to friends, family and employers, an L, G, or B person must confront other people's assumptions that they are heterosexual. Similarly, the 'T' person must come out of the assumption that he or she is comfortable in the gender defined for them at birth (and that's usually the gender in which they present themselves.) In other words, we must come out to ourselves before we can come out to others.

    There is a continuum of coming out to oneself, to family, to employers, and to others. In western cultures this usually occurs in six stages.2

      Stage One: Identity Confusion The fear that the person may be gay or lesbian. 'Oh my God, what if I am gay?.'
      Stage Two: Comparison Being able to accept that the person may actually BE gay; comparing oneself to other gay people.
      Stage Three: Identity Tolerance Exploration of gay identity and the gay community. Often feels bad about being gay, but can't 'help' oneself.
      Stage Four: Identity Acceptance Acceptance and comfort with self as a gay person. Often feels different from heterosexuals and hostile towards straight culture.
      Stage Five: Identity Pride Occurs when the person immerse themselves in lesbian and gay community and culture to live out the identity totally. Arrogant pride and rejection of straight culture as the norm
      Stage Six: Identity Synthesis Occurs when a person develop a fully internalized and integrated lesbian or gay identity and experiences themselves as whole when interacting with everyone across all environments.

    If you are L, G, B, or T you may be working through this process and be at any of these stages. You should share this with your health care provider. If necessary, print out this copy of the above section and give it to your provider.

    Helping Your Provider Establish a Friendly Environment
    There's a lot of information for LGBT patients seeking medical help, but very little help for medical practitioners. LGBT folk often rely on word-of-mouth referrals or the knowledge that a particular doctor is lesbian or a nurse is gay. But that needn't be the case.

    There are things you can do to help your provider create an environment that is safe and welcoming.

    • Encourage the provider to participate in provider referral programs through LGBT organizations or to advertise his or her practice in LGBT media
    • Provide posters or pamphlets with gay-friendly or gay positive messages for the office, clinic, or hospital
    • Acknowledge relevant days of observance in your practice, such as World AIDS Day or gay pride.
    • Suggest that the provider subscribe to gay-oriented news or entertainment magazines (including those that focus on LGBT people of color) in addition to those with a general appeal.
    • Ask the provider to post non-discrimination statements inclusive of sexual orientation and gender identity and expression.
    In addition to the environment, there are other areas where adopting LGBT friendly practices will make your provider more LGBT comfortable. You can also suggest that he or she...

    Provide forms written with appropriate language
    Such forms should...

    • Use the term "relationship status" instead of "marital status,"
    • Include options like "partnered."
    • Use terms like "partner," in addition to "spouse" and/or "husband/wife" when asking for information about a patient's significant other
    • Offer the option of identifying with a particular sexual orientation or providing further explanation.

    Conduct Sensitive Interviews
    Your provider should approach an interview with empathy, open-mindedness, and without rendering judgment. Talking about issues related to patient sexuality is not easy; the provider needs to become comfortable with raising and discussing such topics. During such an interview, the provider should...

    • Use gender-neutral language when inquiring about sexual partners or significant others
    • State that taking a sexual history is routine for his or her practice.
    • Avoid inquiring about sexual orientation and focus on sexual behavior.
    • Assess knowledge of the risk of sexually transmitted infections in relation to sexual behavior early on. (Some well-informed LGBT folk may resent a discussion of HIV risk; for example, assuming a clinician is equating homosexuality with HIV.)
    • Clarify terms or behaviors with which you are unfamiliar.
    • Respect your desire to withhold answers to sensitive questions and offer to discuss the issue at a later time.

    Provide Sensitivity Training for Staff
    Administrative, nursing, and clinical staff education is critical to creating and maintaining friendly environments. A good staff-training program should include topics like these:

    • Use of appropriate language when addressing or referring to patients and/or their significant others
    • Basic familiarity with important LGBT health issues (e.g., substance abuse, partner violence, HIV, STDs, depression, discrimination in social accommodations and the workplace)
    • Indications and mechanisms for referral to gay-identified or gay-friendly providers.
    • Resource lists and guidelines for patient interactions (these can reduce possible staff anxiety in dealing with MSM and/or gay-identified patients.)

    Provide Confidentiality Statements
    Providers should offer a written confidentiality statement that encourages you to disclose information pertinent to sexual health. (The article "Small Effort, Big Change: A General Practice Guide to Working With Gay and Bisexual Men" identifies key elements of such a policy.) The policy should spell out:

    • The information covered
    • Who has access to the medical record
    • How test results remain confidential
    • How information is shared with insurance companies
    • Instances when maintaining confidentiality is not possible

    And the provider should display the confidentiality statement prominently and provide it in writing to every patient. All staff members should agree to the statement in writing.

    Provide Key Resources and Relationships
    An individual clinician or practice cannot meet every need of LGBT patients. Developing a list of resources available in the local community facilitates comprehensive and quality care for all patients. These can include 3:

    • Local community centers
    • Counseling services including support groups, mental health services, and health education
    • Legal resources
    • Identification of subspecialists and other providers in your community who are L,G,B, or T or LGBT friendly.


      EXERCISE 2:
      Creating an LGBT Friendly Environment
      Identify at least three things that might be changed in your health care or human services provider's facility that can be changed to make it more LGBT friendly. After you send this to your coach (in an e-mail) you can proceed to Module 2.

    PROCEED TO MODULE 2
    Cross-Gender Expression


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    The information provided by Rainbow Access Initiative, Inc. is for educational purposes only and is not intended to render medical advice or professional services. The information should not be used for diagnosing or treating a health problem or a disease and is not a substitute for professional care. If you have or suspect you may have a health problem, consult your healthcare provider.

    Rainbow Access Initiative is a 501(c)3 tax-exempt organization.
    These materials were produced through a grant from the New York State Department of Health.
    You may not use them without the written permission of Rainbow Access Initiative, Inc.
    Permission may be obtained by contacting the Director.